The first World Aspergillosis Day will take place in just over a week, and this year’s theme is ‘Caring for Carers’. Visit the World Aspergillosis Day website for more information.
Holding this awareness day at the same time as the ‘Advances Against Aspergillosis’ conference will help us to raise the profile of the disease internationally. But we also want to make sure that the impact is felt for existing members of our community - that’s why we chose the theme ‘Caring for Carers’.
Having the support of a carer – be that a family member, partner, or friend – can make a huge difference to someone living with a chronic disease like aspergillosis. In the UK, 6.5 million people are carers (that’s roughly 1 in 8 adults). These wonderful people save the economy a huge £132 billion per year.
Recently we ran an informal survey to see how members of our Aspergillosis Support group felt about the people who support them. Here are just a couple of quotes:
“My husband will drop anything to come home and drive me to hospital or to look after me, my daughter the same”
“I have a wonderfully supportive husband, family and friends who have all helped in so many practical ways (e.g. childcare).”
So this year we want to make sure that carers feel valued and supported too, and have access to the information they need. That’s why we’re asking everyone to spread the word about our Facebook group for carers, which can be found here: https://www.facebook.com/groups/aspergillosis.carers/